My husband, James and I are the proud parents of 5 beautiful children. Our youngest are twin 2 year old girls, and are the inspiration and motivation behind this company. One of our twins, Sydney, was born with a Craniofacial condition known as Treacher Collins Syndrome which causes underdevelopment of the facial bones, thereby creating difficulties in breathing, eating by mouth, speech and hearing. Sydney spent the first 4 months of her life in the NICU where she received a tracheotomy to allow her to breathe, and a feeding tube placed in her stomach. She also had her first of many reconstructive surgeries. Tissue was taken from behind her ears and grafted to create lower eyelids enabling her to better close her eyes and protect them from permanent damage.
Brooklyn and Sydney - 2009
Sydney faces many years of reconstructive procedures, and although it breaks my heart to know she will have to endure these difficult procedures, she is a bright, happy, and determined little girl. Because of her amazing personality and spirit, I know that she will handle these surgeries better than most of us would. She is an inspiration to our family, and to all she comes in contact with, she reminds us of what is important in life and that outward appearances are not what make a person, but rather beauty comes from within.